Waking up throbbing, sore, painful, fatigued and just feeling achy . The perfect feeling for if your trying to lose weight, because this is a sign that the exercises you are doing are working. However I am not trying to lose weight. I am not doing daily exercises. I do however, suffer with these effects of exercising. I suffer with Generalized Pain Syndrome, more commonly known as Fibromyalgia.
The worst part of being a sufferer of Fibromyalgia is not the pain, you can take medication to calm it down. It’s the fact that you can look straight at me and it would appear that there is not a single thing wrong with me. The medication I take does not take the pain away but it helps calm it down. Part of Fibromyalgia is trying to find medication that is best suited for you. As I am in my 20’s, my doctor isn’t keen on me having strong medication.
Fibromyalgia is a condition that causes your body to ache. Some parts of your body may even be to painful to touch. Your muscles can sometimes feel like they have been overworked or pulled. This is why you feel like you’ve done a large amount of exercise. Your muscles can sometimes even twitch, burn or have deep stabbing pain. Fibromyalgia can also effect your hormones and can cause depression. Having pain and achiness around the joints in the neck, shoulder, back, and hips can make it extremely hard to sleep at night.
There are other symptoms of Fibromyalgia such as:
- Abdominal pain
- Chronic headaches
- Dryness in mouth, nose, and eyes
- Hypersensitivity to cold and/or heat
- Inability to concentrate (called “fibro fog”)
- Irritable bowel syndrome
- Numbness or tingling in the fingers and feet
To diagnose Fibromyalgia your doctor has to rely on your symptoms, blood test and family history. For some, even a thyroid test may have to be carried out. Everybody that suffers from Fibromyalgia deals with it differently, as the pain differs from person to person. Day to day life is hard for me. Every night I go to bed in pain and pray that I will be able to sleep. Even with sleep medication I can still be rolling around in agony until the early hours. Then I have to get up and do a full days work, tired because I couldn’t sleep and aching from the Fibromyalgia.
My days off work are spent recovering from the hard shifts I have had at work and the pressure I have put my sore, achy body through. I find it hard to get out of bed in the morning. I normally roll out at 11.00am. Then once I am up I just want to lay down somemore to take the pressure off my legs and hips. Each day is a chore getting out of bed and trying to get through my day. Its not just getting in and out of bed that hard. Getting in and out of the bath can be difficult, as I don’t always have the strength to push myself up out of the bath and the pains I suffer with in my shoulders means even showering can be task. If it wasn’t for my partner I would be stinking! The worst and most humiliating part of this is when I go shopping, bend down to get something from the bottom shelf and get stuck on the floor. I’m only young and finding that I am asking someone to help me off the floor was so humiliating. I don’t have a social life anymore, purely because the pains can come on fast and hard in a matter of moments. I can be walking around like a normal person my age one minute and then BAM! I am like an old person!
Its not just physically that Fibromyalgia affects me, but it takes a mental toll as well. I want to cry most days because the pain is so intense. I want to cry because I am so tired. I would love to feel, just for a few minutes, what it’s like to not have no pain. To just feel normal.
There is no cure or treatment for Fibromyalgia. I will have to live with this for the rest of my life. Taking medication, putting on a brave face and hoping that some day someone will have a cure. Not everyone understands how hard living with this syndrome can be. Not everyone believes that it even exists and is more of a mental health problem.
I suffer from this every day. I know what its like to have the pain. All I can do is hope for the best.